Category Health & Science

“Aboriginal people need to know that the person making life-changing decisions is listening”

By Neena Bhandari

Sydney, 10.01.2022 (Hireup): Aboriginal people, especially those living in regional towns, face additional barriers in accessing disability supports and services that suit their needs. Wayne Wright, of Kamilaroi and Wiradjuri descent, shares his experience of living in Orange (NSW) with mitochondrial autosomal dominant optic atrophy (DOA), an inherited optic neuropathy, that has rendered him legally blind and also impacted his hearing and nervous system.

The disease, which he inherited from the maternal side of his family, began to have an impact on his daily life around the age of 16. Determined, he pursued his father’s occupation and drove heavy machinery in the Top End for nearly two decades until his condition began to worsen.

“At 39, my driving license was revoked. I was compelled to choose a different career so I enrolled in a community service course at TAFE. It has opened a rewarding career pathway, but because I only have 20/13 vision and can’t hear properly, I cop a lot of abuse in the community on a daily basis. This has been emotionally draining and detrimental to my mental health”, says Wright.

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Aboriginal-driven research is a must for Indigenous say in disability policy, says John Gilroy

By Neena Bhandari

Sydney, 04.01.2021 (Hireup): Aboriginal-owned and driven research is essential to enable Indigenous people to have a voice in disability policy, says John Gilroy, a Koori man from the Yuin nation. His lived experience of growing up with a significant speech impediment, linked to a chronic respiratory condition, has made him a passionate advocate of Aboriginal and disability rights.

He recommends the National Disability Insurance Agency (NDIA) should invest more resources into building and up-skilling the current National Disability Insurance Scheme (NDIS) planning workforce and the Aboriginal community-controlled services sector.

“The NDIS is built on a white fella capitalist viewpoint of purchasing services and working on for-profit market-based philosophies. This goes against the grain of how many Aboriginal people want to engage with services and supports relating to their disabilities or being carers of people with a disability,” says Gilroy, associate professor and deputy director of Aboriginal and Torres Strait Islander Research at the University of Sydney.

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‘Perfect storm’ created for food collapse, panel hears

By Neena Bhandari

Sydney, 26.11.2021 (SciDev.Net): Hikes in oil prices, conflicts, emerging diseases, poor governance, and disruption in supply chains due to transportation blockages during the pandemic have come together to create a potentially devastating scenario for the global food system, a panel on food security heard.

“These have created a perfect storm for global food collapse”, Fan Shenggen, chair of the academy of global food economics and policy at China Agricultural University, told an online panel hosted by SciDev.Net and its parent organisation CABI on Thursday (25 November).

Globally, food prices are up nearly 33 per cent since the same period last year, according to the UN Food and Agriculture Organization’s monthly food price index released on 2 September.

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