“Aboriginal people need to know that the person making life-changing decisions is listening”

10/01/2022 0 Comments read Disability, Health & Science, Indigenous, NDIS

By Neena Bhandari

Sydney, 10.01.2022 (Hireup): Aboriginal people, especially those living in regional towns, face additional barriers in accessing disability supports and services that suit their needs. Wayne Wright, of Kamilaroi and Wiradjuri descent, shares his experience of living in Orange (NSW) with mitochondrial autosomal dominant optic atrophy (DOA), an inherited optic neuropathy, that has rendered him legally blind and also impacted his hearing and nervous system.

The disease, which he inherited from the maternal side of his family, began to have an impact on his daily life around the age of 16. Determined, he pursued his father’s occupation and drove heavy machinery in the Top End for nearly two decades until his condition began to worsen.

“At 39, my driving license was revoked. I was compelled to choose a different career so I enrolled in a community service course at TAFE. It has opened a rewarding career pathway, but because I only have 20/13 vision and can’t hear properly, I cop a lot of abuse in the community on a daily basis. This has been emotionally draining and detrimental to my mental health”, says Wright.

Continue reading →

Aboriginal-driven research is a must for Indigenous say in disability policy, says John Gilroy

04/01/2022 0 Comments read Disability, Health & Science, Indigenous, NDIS

Dr John Gilroy. Photo Credit: Supplied by JG.

By Neena Bhandari

Sydney, 04.01.2021 (Hireup): Aboriginal-owned and driven research is essential to enable Indigenous people to have a voice in disability policy, says John Gilroy, a Koori man from the Yuin nation. His lived experience of growing up with a significant speech impediment, linked to a chronic respiratory condition, has made him a passionate advocate of Aboriginal and disability rights.

He recommends the National Disability Insurance Agency (NDIA) should invest more resources into building and up-skilling the current National Disability Insurance Scheme (NDIS) planning workforce and the Aboriginal community-controlled services sector.

“The NDIS is built on a white fella capitalist viewpoint of purchasing services and working on for-profit market-based philosophies. This goes against the grain of how many Aboriginal people want to engage with services and supports relating to their disabilities or being carers of people with a disability,” says Gilroy, associate professor and deputy director of Aboriginal and Torres Strait Islander Research at the University of Sydney.

Continue reading →

Employ more Aboriginal people in the disability service sector, says June Riemer

20/12/2021 0 Comments read Disability, Indigenous, NDIS

June Riemer. Photo Credit: Supplied by FPDN

By Neena Bhandari

Sydney, 20.12.2021 (Hireup): June Riemer, a proud Gumbaynggirr Dunghutti woman and Deputy CEO of First Peoples Disability Network has led national campaigns for better, more inclusive and culturally appropriate access to the National Disability Insurance Scheme (NDIS) for her people. She speaks to me about why Aboriginal and Torres Strait Islander people with a disability face numerous barriers in accessing and navigating the NDIS and what measures can be taken to ensure they receive culturally appropriate supports.

“The NDIS wasn’t designed culturally, whether that’s for the First Nations people or the culturally and linguistically diverse community,” says Riemer, who won the 2021 NSW Aboriginal Woman of the Year award in recognition of her four decades of advocacy for Indigenous people with a disability.

“Culturally, given Australia’s history and the fact that we weren’t even citizens till 1967, having a disability within our communities is not any different because everyone’s at a disadvantage. This is a good thing because disability is not seen as a deficit, but it’s about caring and supporting someone, who might need more help, for example, with walking or communicating,” she adds.

Continue reading →