Posts by Neena Bhandari

“Aboriginal people need to know that the person making life-changing decisions is listening”

By Neena Bhandari

Sydney, 10.01.2022 (Hireup): Aboriginal people, especially those living in regional towns, face additional barriers in accessing disability supports and services that suit their needs. Wayne Wright, of Kamilaroi and Wiradjuri descent, shares his experience of living in Orange (NSW) with mitochondrial autosomal dominant optic atrophy (DOA), an inherited optic neuropathy, that has rendered him legally blind and also impacted his hearing and nervous system.

The disease, which he inherited from the maternal side of his family, began to have an impact on his daily life around the age of 16. Determined, he pursued his father’s occupation and drove heavy machinery in the Top End for nearly two decades until his condition began to worsen.

“At 39, my driving license was revoked. I was compelled to choose a different career so I enrolled in a community service course at TAFE. It has opened a rewarding career pathway, but because I only have 20/13 vision and can’t hear properly, I cop a lot of abuse in the community on a daily basis. This has been emotionally draining and detrimental to my mental health”, says Wright.

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Aboriginal-driven research is a must for Indigenous say in disability policy, says John Gilroy

By Neena Bhandari

Sydney, 04.01.2021 (Hireup): Aboriginal-owned and driven research is essential to enable Indigenous people to have a voice in disability policy, says John Gilroy, a Koori man from the Yuin nation. His lived experience of growing up with a significant speech impediment, linked to a chronic respiratory condition, has made him a passionate advocate of Aboriginal and disability rights.

He recommends the National Disability Insurance Agency (NDIA) should invest more resources into building and up-skilling the current National Disability Insurance Scheme (NDIS) planning workforce and the Aboriginal community-controlled services sector.

“The NDIS is built on a white fella capitalist viewpoint of purchasing services and working on for-profit market-based philosophies. This goes against the grain of how many Aboriginal people want to engage with services and supports relating to their disabilities or being carers of people with a disability,” says Gilroy, associate professor and deputy director of Aboriginal and Torres Strait Islander Research at the University of Sydney.

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The omnipresence of Omicron as we usher in 2022

By Neena Bhandari

The incisive eyes of a Powerful Owl were staring at me from the last page of the wall calendar. The days had melted into weeks and then months. 2021 had begun on a note of optimism, ignited by a promise of vaccines against the novel coronavirus, but that ray of hope has been eclipsed by the lengthening shadow of new mutations.

A more transmissible mutation — the Omicron (B.1.1.529) variant is surging unhindered as we usher in another year of living with SARS-CoV-2. The omnipresence of Omicron has dimmed New Year festivities and disrupted family reunions, just as we were hoping life would return to some form of normalcy.

Globally, on an average one million new coronavirus cases are being recorded daily. Public health systems have been stretched to a breaking point. Doctors, nurses, medical laboratory professionals, pharmacists, scientists and the innumerable health professionals have spent most part of their waking hours over the past two years helping the world cope with the pandemic.

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